Project SPIRIT Sickle Cell (PSSC), INC. 

(SPIRIT= Sickle cell Pastoral Intervention Reaching Individuals in Transition)


MISSION STATEMENT

            Project SPIRIT Sickle Cell provides awareness  of sickle cell and spiritually supports individuals as they explore personal beliefs, navigate medical and life transitions, as well as the challenges of living with sickle cell disease.

 MARCH 2, 2024 - BLOOD DRIVE

WILL BE RE-SCHEDULED

We've earned a 2024 GOLD Seal of Transparency!!! 


Learn more about our organization’s impact through our       non-profit profile on Candid. Click below:

PSSC, Inc. - 2024 GuideStar Report 

Click HERE to Register     for the next

 Transformers Meetup meeting

Tuesday March 5, 2024

        NEWS!!

                                 In a major advance, the Food and Drug Administration (FDA) approved                                                           two gene therapies for sickle cell disease (SCD)

The FDA on Friday, December 1, 2023, approved the first therapy based on CRISPR gene-editing technology to address the painful effects of sickle cell disease.

Why it matters: The technology could be applied beyond the estimated 100,000 Americans with sickle cell to other blood disorders like hemophilia, as well as certain cancers and infectious diseases.

Driving the news: The FDA approved Casgevy from Vertex Pharmaceuticals and CRISPR Therapeutics, a one-time treatment for patients 12 years and older.

What they're saying: "Sickle cell disease is a rare, debilitating and life-threatening blood disorder with significant unmet need, and we are excited to advance the field especially for individuals whose lives have been severely disrupted by the disease," said Nicole Verdun, director of the Office of Therapeutic Products in the FDA's Center for Biologics Evaluation and Research.

Catch up quick: Until now, patients have had to turn to bone marrow transplants.

The Sickle Cell Disease Association of America (SCDAA) holds their position on the approval of this therapy as a major advance in the treatment of sickle cell disease; however, there are valid concerns about accessibility and the potential for adverse effects...(read more...)  https://www.sicklecelldisease.org/2023/10/26/scdaa-statement-on-exa-cel-gene-therapy/

THANK YOU FOR SUPPORTING PSSC's  

2023 FUNDRAISING EVENTS 

WE DID AN AMAZING JOB 

THANKS TO EACH ONE OF YOU !!!!


Watch our PSSC Introductory Video below

#STICKTOITISM

            Believing in something so passionately that success is inevitable, 

because we are consistent and focused.